Today has been a long but good day. I had a followup doctors appointment at 1pm for my blood pressure and it is still too high, so they have upped the meds again – hopefully this will finally get it come back down into a normal range.
The CAT Scan for Taylor was done this afternoon and the leak was too small to locate. The Radiologist expected it would be too small but Dr. O wanted to see how all of Taylor’s organs were doing as well and he was very pleased with how everything looked.
Dr. O said they will start Taylor on the special formula tomorrow morning which we are so thankful for, it will be wonderful for Taylor. She has been pretty sad the last couple days hoping for food. Dr. O is hopeful that the formula, which should thin out the fluid that is leaking, will allow the leak to heal on its own. Taylor will probably also be receiving some medication, which has minimal side effects, that also promotes healing of the leak. He also wants to try again tomorrow to put the PICC line in, they have tried a few times already unsuccessfully, but this would be very helpful for administering medication and supplementing nutrients. It would replace the line that has been in Taylor’s belly button since she was born and probably needs to come out soon.
We were encouraged after being able to meet with Dr. O today. He helped further explain and answer questions regarding the new diagnosis and treatment plan and also told us that if the thoracic duct leak had occurred earlier in the pregnancy, Taylor would not have survived, because her lungs would not have been developed enough to handle all the fluid. We praise the Lord for another indication of His Hand on Taylor’s life!!!