Taylor Basch

Yesterday (Sunday) was a rough day for Taylor and emotionally draining for us. She started to get fussy and not seeming herself in the early morning hours and as the day progressed Taylor did not want to eat and her breathing became more labored. After a couple x-rays, they determined that there was fluid building up in her chest cavity because her drainage tube was clogged. They put in a new drainage tube in the early evening and. By 6am this morning her 24 hour fluid output was 85mls, most of which came out within the 1st half hour after changing her tube and the total amount was probably accumulating over a few days. Removing all the fluid made Taylor much happier today. She has eaten well and is not fussy. The doctor have increased Taylor’s medication and put her on three days of antibiotics to protect her from infection. The antibiotics must be given to her via an IV and this afternoon they needed to replace an IV that was not working any longer. It took a few hours and many different people trying in many different spots, to finally get an IV in. It was a tough afternoon for both Taylor and I and the nurses and doctors. As of 7pm tonight, only 3mls of fluid has drained all day. We don’t know anymore if we should be encouraged about this or worried that the fluid is collecting again and going to put her under distress.

A new doctor came on today for the month of December and he would like to meet with Brian and I to get to know us and talk about Taylor in the next couple days. Please pray for wisdom and clarity for Taylor’s new doctor and that we would feel good about the change in doctors and care she is getting. We have always really appreciated her doctors and nurses and the great care she has received.

Please also pray that we would have renewed hope and trust in the Lord we know that He is faithful to Taylor and all of us and will bring Taylor’s healing to completion according to his perfect will.

Psalm 69:16 says Answer me, O Lord, out of the goodness of your love; in your great mercy turn to me. We praise the Lord that He answers our pleas for help out of the goodness of His steadfast, never changing love and that because of His great mercy He is always turned toward us!!Thank you for joining us in pleading for help on behalf of Taylor and our whole extended family. May the Lord empower the prayers of His people!!

Taylor’s 24 hour fluid output was only 2-3 mls this morning!! Throughout today there has been little fluid draining. The doctors had talked about doing an x-ray but have decided to wait. The hope is to clamp the tube either Sunday or Monday and then do a follow up x-ray to determine if the chest tube can come out. Taylor’s breathing and eating continue to be good, which is so important in evaluating Taylor’s condition.
I finally was feeling well enough to go to the NICU last night and visit with Taylor!!! I was able to hold Taylor, feed her and change a couple diapers. She even smiled at me a couple times (they were so good to see)!!

Please pray that we would continue to trust the Lord as we wait patiently for each step of  Taylor’s healing process. Praise the Lord that He so faithfully carries Taylor in His healing arms.

It is hard to believe today is day 30 of Taylor’s life. We have much to be thankful for on this Thanksgiving Day and still much to pray for. Taylor’s fluid total yesterday jumped back up to around 50, which was pretty discouraging for Brian and I. I am also discouraged to still be dealing with my cold and not being able see or hold my girl in almost a week. We are all very ready for her little body to be healed and to come home. Trevor prays for her all the time and asks us when his baby Taylor will be better and can home home from the hospital so he can hold her. We continue to trust the Lord for his perfect timing in Taylor’s life and ours.

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Taylor had a good weekend. She started the medicine Friday afternoon and yesterday and today’s 24 hour fluid levels were both around 30mls, which is down from the average of between 80mls – 100mls!! Dr. O tried to put in a PICC line again on Saturday so that it would be easier to give Taylor a constant drip of the medicine. This was again unsuccessful, so he made a decision not use an IV (which has to be moved every couple days), but to give her the medicine subcutaneously, by a shot three times a day. She has been alert and hungry and seems content.

I came down with the respiratory bug on Saturday and feel pretty miserable. I haven’t been able to see Taylor since Friday and will not be able to until a couple days after all my symptoms are gone. Brian was able to go yesterday and hold and feed Taylor, while wearing a mask. He had not been able to see Taylor since Tuesday morning. Trevor seems to be feeling better, but still recovering.

Thank you for your continued prayers, they have been used by the Lord to impart His grace in a difficult situation all for His glory and to further His Kingdom work.

This morning after a chest x-ray was done the doctors decided they needed to replace Taylor’s chest tube because it was clogged and fluid had built up in her chest cavity causing her difficulty breathing. The procedure went well and they were able to drain the built up fluid. We are thankful that Taylor’s breathing is back to normal. Dr Omar made a decision to begin the medicine this afternoon, starting with a very low amount and slowly increasing over the next ten days. The hope is that the leak will be stopped and there will be no further fluid draining by the end of the ten days. If there is over 5-10 mls still draining at the end of the ten days then they will reevaluate and possibly have to transport Taylor to another hospital for surgical evaluation.

I was able to spend time with Taylor this morning. I had to wear a mask and could not hold or touch Taylor, but I could read and talk to her. Trevor is still dealing with a respiratory infection and I’m still hoping to avoid all sicknesses.

Please pray that Taylor would respond quickly to the medicine!! The hope is to see a decrease within the first few days. We especially covet your prayers for this to happen over the next week. We would like to avoid, if at all possible, having to transport Taylor to another hospital and having her undergo surgery. Also that we would trust the Lord to bring about His good and perfect healing in Taylor, all to His glory.

Taylor has had a good couple days. She is eating great and they have actually increased her feeding a little because she has been acting so hungry. Her fluid has been decreasing a little the last day or so. No one has been able to visit Taylor for the last couple days because Brian got the stomach flu and Trevor is dealing with cold and respiratory infection. I have been very cautious, just peeking in here and there and always wearing a mask, but I very much miss being able to hold her. We are very blessed with great nurses who love her, hold her and care for her very much. Please pray for healing for the whole family and protection against any more sickness. We praise the Lord for His faithful care of all of us.

Taylor had a fairly quiet weekend. Because she seemed extra sleepy on Friday, they did some blood work, which showed some inflammation, so the doctors started Taylor on a round of antibiotics. She was more perky yesterday and new blood work showed the inflammation was decreasing! Dr. O plans to start the new medication this Friday that will hopefully help stop the drainage. Because Taylors case is so rare there is no documentation regarding how the antibiotics could effect the new medication, so he wants to wait to begin that.

Taylor’s EEG results came in yesterday and everything was normal!! Praise the Lord!! My blood pressure has been better and they have reduced my medication.  We all seem to be feeling back to normal so that is great for the time being also.

A little story that is too neat not to mention. Yesterday, I saw the Ultrasound Tech in the NICU that had done my ultrasound at the doctors office that determined the need for an emergency c-section. The tech was so thrilled to see Taylor doing so well. She told me she was so concerned for Taylor because of all the fluid and she did not see any cord blood flow. It turns out she is a Christian and went home after work and prayed for me by name and for Taylor. She felt that Taylor would not have survived another day in the womb. We serve an amazing God!!

We testify that the Lord’s amazing work is displayed mightily in Taylor!! All to His glory!! May we all see and testify of the Lord’s great work in our lives today, for He is a faithful and compassionate God and aware of all of our needs. Thank you for all your prayers!! May the Lord bless you richly today.

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Taylor has been able to continue with the formula feedings and was up to full feedings today so Dr. O took out her central belly button line!! She was also moved into a regular nursery bed, but still in the NICU. But now we don’t have to look through glass or reach through the little holes to touch her or talk to her. Taylor had her follow up EEG, since she is no longer on Morphine, and the results should come in by Monday. She was rather sleepy today – not always wanting to suck on her bottle, so to be on the cautious side, they have ordered lab work to rule out infection. At this point there are no other indications, but with so many wires and tubes it would not be surprising.

Jenny has continued to have normal blood pressure during her daily checks. Trevor is feeling much better after his bout with a stomach virus yesterday.  Brian is still dealing with some sinus/cold virus and has been unable to see Taylor since Monday.

Taylor has been doing well on the new formula, she is a great eater!! The fluid seems to be changing again into the more milky thicker looking fluid, so we are hopeful they will not take her feedings away again. At this point Dr. O will be monitoring the fluid, but he has not changed any orders yet. He also decided not to try the PICC line again, they are just using an IV in her hand right now, but those don’t last very long, so we’ll wait and see what they decide to do.

Trevor woke up this morning with the stomach flu. We are not able to see Taylor today because of this and he really just wants to be held by mommy and daddy. He has been such a good little boy, but I think the crazy schedule is catching up with him.

We thank you all so much for continued support and prayers for our family and especially Taylor. To God be all the glory!!